In this case, we were fortunate to use publicly available data, specifically statistics from the Czech Statistical Office and reports from health insurance companies. This data is valid nationwide and was ideal for system dynamics modeling.
On the other hand, working with truly sensitive patient data for research purposes was almost impossible, especially during my PhD studies. There were no precise mechanisms to obtain exceptions or permission to use such data, nor infrastructure to enable its secure processing. Many research projects ended before they even began. Additionally, it would have required enormous effort just to clean and standardize the data, often more than was needed for the modeling itself.
Today, the situation is much better. In some areas, such as the development of learning algorithms, there is now active data sharing and anonymization, which opens up new possibilities. I also see a change in mindset. Where individualism and reluctance to share used to dominate, there is now a greater emphasis on finding better solutions, such as more accurate detection or prediction, in many cases thanks to open access to data.
How would you characterize the current state of open science at Czech universities and research institutions? Where do you see the most significant progress, and what areas remain problematic?
I would say that over the past year, Open Science has been in a Phoenix phase, having risen from the ashes and flown through research institutions with a radiant appearance. It has planted the seeds of good ideas everywhere, which we are working on, have embraced, and are building an environment for an "ornamental garden with the future tree of Open Science." I may have gotten a bit poetic, but I really do perceive significant progress in adoption and in reducing resistance.
What is still missing? I would mention the uncertainty of choosing a suitable repository for data sharing. There are many recommended, supported, well-known, and widely used repositories. This diversity can actually be problematic. I worry that if the state, ministries, the European Union, or other higher authorities were to make an insensitive choice or impose regulations, it could undermine the trust and stability of the whole community.